Presentations
On this page you will find a list of international webinar and conference presentations given by one or more members of the Rett UK Communication and Education team, all relating to Rett syndrome, and its communication challenges, needs and potential.
International Webinars:
• May 2020, Facebook Live webcast, Rettsyndrome.org. GS Townend & T Bartolotta, “Intervention strategies for developing communication skills, Part III.”
• May 2020, Facebook Live Webcast, Rettsyndrome.org. GS Townend & T Bartolotta, “Intervention strategies for developing communication skills, Part II."
• April 2020, Facebook Live Webcast, Rettsyndrome.org, GS Townend & T Bartolotta, “Intervention strategies for developing communication skills, Part I."
• March 2020, Facebook Live Webcast, Rettsyndrome.org. GS Townend & T Bartolotta, “Communication engagement strategies.”
• October 2019, Rett Ed Webinar, Rettsyndrome.org. GS Townend & T Bartolotta, “Newly-published Communication Guidelines for Rett."
To see other webinars by Rettsyndrome.org/International Rett Syndrome Foundation, click here.
International Conferences:
• June 2020, AKUK Conference, Hamburg, Germany (moved online due to COVID-19). GS Townend, “Rett Syndrome Communication Guidelines.”
• March 2020, Rett Syndrome Study Day, Odense, Denmark. GS Townend, “Assessment of receptive language and cognition in individuals with Rett syndrome” AND GS Townend “Rett syndrome communication guidelines - a handbook for therapists, educators and families.”
• September 2019, 6th European Rett Syndrome conference, Tampere, Finland. GS Townend, “Assessing underlying skills of individuals with Rett syndrome.”
• September 2019, Communication Matters Conference, Leeds, UK. GS Townend, “International guidelines for management of communication in individuals with Rett syndrome.”
• April 2019, Faculty and students of Speech-Language Pathology Department, Monmouth University, NJ, USA. GS Townend, “Speech-language pathology & AAC services and support for people with physical and/or intellectual disabilities - a European perspective.”
• March 2019, Conference organised by Caritas Education Center for Social Services - ‘Augmentative and Alternative Communication’, St. Petersburg, USSR. GS Townend, “International Guidelines for the Management of Communication in Individuals with Rett Syndrome.” (video presentation)
• September 2018, RettRome2018, ‘Rett syndrome research, towards the future’, scientific meeting and parent conference, Rome, Italy. GS Townend “Oculomotor function in individuals with Rett syndrome” AND GS Townend, “International Communication Guidelines for Individuals with Rett Syndrome."
• April 2018, 8ª Jornada Síndrome de RETT – ‘ABRIENDO PUERTAS’, Catalan Rett Association Conference – ‘Opening Doors’, Barcelona, Spain. GS Townend, “International Guidelines for the Management of Communication in Individuals with Rett Syndrome.”
• March 2018, North American Clinics Network meeting, teleconference by video link. GS Townend, “Rett syndrome in a European context” AND GS Townend “Development of international guidelines for management of communication – project update.”
• November 2017, 5th European Rett Syndrome conference, Berlin, Germany. GS Townend, “Communication in individuals with Rett syndrome: challenges and possibilities” AND GS Townend, Round Table contributor “Future research directions – communication.”
• September 2016, Rett 50.1 Vienna, Austria (celebrating the 50th anniversary of the first publication on Rett syndrome). GS Townend, “Communication in Individuals with Rett Syndrome: What we know now and what we have yet to find out.”
• June 2016, Rettsyndrome.org Family Conference, Chicago, USA. GS Townend & T Bartolotta, “Development of clinical guidelines for the management of communication in individuals with Rett syndrome.”
• June 2016, Rettsynsdrome.org Research Symposium, Chicago, USA. GS Townend & P Marschik “Behavioural phenotypes of Rett syndrome and developmental trajectories of socio-communicative forms and functions.”
• October 2015, 4th European Rett syndrome congress, Rome, Italy, GS Townend, “Eye gaze technology as a form of augmentative and alternative communication support for individuals with Rett syndrome: experiences of families in the Netherlands” AND GS Townend & P Marschik, “Recognizing atypical developmental pathways: implications for speech, language and communication intervention."