Research Updates
On this page you will find new articles of interest, relating to Rett syndrome, with a special focus on communication and education.
This includes papers authored/co-authored by members of the Rett UK Communication and Education team as well as those published by other research teams around the world.
*NEW* Article exploring the need to develop fit-for-purpose outcome measures (including measures of communication) in order to evaluate meaningful change in clinical trials and clinical practice (December 2024)
*NEW* Article exploring carers' perspectives on the burden of illness in Rett syndrome and highlighting the impact on families of the communication challenges associated with Rett syndrome (August 2024)
*NEW* Research assessing language and cognition in children with Rett syndrome published by Callie Ward, Shula Chiat and Gill Townend (April 2021)
*NEW* Article about the Rett Syndrome Communication Guidelines published in the AAC journal (July 2020)
